Team Albi - Snowdon Marathon for Epidermolysis Bullosa

I will be running the Snowdon Marathon at the end of October to raise funds for DEBRA UK - The Butterfly Skin Charity 🦋 

12 month old Albi was born with Severe Recessive Dystrophic Epidermolysis Bullosa RDEB-GS.
It is a very rare genetic disease that affects Albi both internally and externally. Albi is essentially missing the *glue* (technically known as collagen 7) which attaches the skin to his body; the slightest bit of friction will cause his skin to blister and/shear. Albi was born with significant skin loss at birth, he has to have daily dressing changes to help his wounds to heal and the minimise infections. Albi will wear bandages every day to help protect his skin and reduce new wounds and blisters caused by everything day friction. There is currently no cure or treatments for EB, with cases like Albi’s being fatal in their 20s to 30s - this is why fundraising is so important to help better the lives of those living with EB. You can support Albi and all EB sufferers by donating to this amazing charity 🦋🦋