21 hours ago
Gareth & Lyndsay
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Good luck Mand!
21 hours ago
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Good luck Mand!
22 hours ago
+ £5.00 Gift Aid
Smash it Mand. X
22 hours ago
+ £6.25 Gift Aid
Go smash it Mand!
yesterday
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Good luck Mand, you’ve got this girl!!
1 week ago
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All the hard training will pay off and you'll be fab 💪 remember, don't be a hero at the start and don't be a wuss at the end 😀
1 week ago
+ £2.50 Gift Aid
Go on Mand!! 🙌🏻❤️🙌🏻
1 week ago
+ £2.50 Gift Aid
Good luck. Look after the toes!
1 week ago
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Gosh! Don't know how lucky we are. Fair play Mand. Such a great cause. With you all the way. Hats off! Keep going girl! You've got this xx
1 week ago
+ £5.00 Gift Aid
Good luck Amanda!
1 week ago
+ £2.50 Gift Aid
Good Luck Mand. You'll be amazing xxx
Event date: 26th October 2024
Amanda Moore is raising money for DEBRA
I will be running the Snowdon Marathon at the end of October to raise funds for DEBRA UK - The Butterfly Skin Charity 🦋
12 month old Albi was born with Severe Recessive Dystrophic Epidermolysis Bullosa RDEB-GS.
It is a very rare genetic disease that affects Albi both internally and externally. Albi is essentially missing the *glue* (technically known as collagen 7) which attaches the skin to his body; the slightest bit of friction will cause his skin to blister and/shear. Albi was born with significant skin loss at birth, he has to have daily dressing changes to help his wounds to heal and the minimise infections. Albi will wear bandages every day to help protect his skin and reduce new wounds and blisters caused by everything day friction. There is currently no cure or treatments for EB, with cases like Albi’s being fatal in their 20s to 30s - this is why fundraising is so important to help better the lives of those living with EB. You can support Albi and all EB sufferers by donating to this amazing charity 🦋🦋
Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto DEBRA.