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Total raised so far

90%

£450.00 of £500 target +£102.50 Gift Aid See breakdown

Recent donations

21 hours ago

Gareth & Lyndsay

£20.00

+ £5.00 Gift Aid

Good luck Mand!

22 hours ago

Jayne and ian

£20.00

+ £5.00 Gift Aid

Smash it Mand. X

22 hours ago

The Poultons

£25.00

+ £6.25 Gift Aid

Go smash it Mand!

yesterday

The Shaws

£20.00

+ £5.00 Gift Aid

Good luck Mand, you’ve got this girl!!

1 week ago

Holders

£20.00

+ £5.00 Gift Aid

All the hard training will pay off and you'll be fab 💪 remember, don't be a hero at the start and don't be a wuss at the end 😀

1 week ago

Chris and Anna

£10.00

+ £2.50 Gift Aid

Go on Mand!! 🙌🏻❤️🙌🏻

1 week ago

Dawn

£10.00

+ £2.50 Gift Aid

Good luck. Look after the toes!

1 week ago

Kelly Davies

£20.00

+ £5.00 Gift Aid

Gosh! Don't know how lucky we are. Fair play Mand. Such a great cause. With you all the way. Hats off! Keep going girl! You've got this xx

1 week ago

The James family

£20.00

+ £5.00 Gift Aid

Good luck Amanda!

1 week ago

Jess Morgan

£10.00

+ £2.50 Gift Aid

Good Luck Mand. You'll be amazing xxx

Team Albi - Snowdon Marathon for Epidermolysis Bullosa

Event date: 26th October 2024

Amanda Moore is raising money for DEBRA


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My story

I will be running the Snowdon Marathon at the end of October to raise funds for DEBRA UK - The Butterfly Skin Charity 🦋 

12 month old Albi was born with Severe Recessive Dystrophic Epidermolysis Bullosa RDEB-GS.
It is a very rare genetic disease that affects Albi both internally and externally. Albi is essentially missing the *glue* (technically known as collagen 7) which attaches the skin to his body; the slightest bit of friction will cause his skin to blister and/shear. Albi was born with significant skin loss at birth, he has to have daily dressing changes to help his wounds to heal and the minimise infections. Albi will wear bandages every day to help protect his skin and reduce new wounds and blisters caused by everything day friction. There is currently no cure or treatments for EB, with cases like Albi’s being fatal in their 20s to 30s - this is why fundraising is so important to help better the lives of those living with EB. You can support Albi and all EB sufferers by donating to this amazing charity 🦋🦋


Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto DEBRA.

Amanda Moore is fundraising for

DEBRA

Charity number: 1084958

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Help me reach my £500 target

Your donations will help the great work DEBRA do.

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