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Total raised so far


£22,021.95 of £10,000 target +£3,577.08 Gift Aid See breakdown

Recent donations

4 months ago

David Hull


+ £2.50 Gift Aid

Love and thoughts with all the family.

4 months ago

Darren Wolfendale


+ £5.00 Gift Aid

4 months ago

Sue B


+ £5.00 Gift Aid

I never had the pleasure of meeting Kelly but it is so clear she was an incredible lady. Wishing you all strength going forwards.

4 months ago



+ £5.00 Gift Aid

4 months ago



+ £3.75 Gift Aid

5 months ago

Tracy Brown


+ £12.50 Gift Aid

6 months ago

Curtain Call Theatre Company Shrewsbury


6 months ago

Sue Lloyd


In memory of dear, brave Kelly. Love Auntie Sue xx

6 months ago

Stephen & Jo


+ £25.00 Gift Aid

In memory of our lovely friend Kelly

6 months ago

Jaya & Dinesh Amarnath


+ £10.00 Gift Aid

Dear Booth family, We were so blessed with your family's amazing musical talent in our church and remember Kelly with much fondness. May our God Almighty envelop you with His love and grant you His divine peace & comfort. Loving regards, Jaya & Amarnath family

The longest music jam in town - the legacy

Guy Booth is raising money for Motor Neurone Disease Association and Severn Hospice Limited

My story

On the 25th February 2022, my beautiful wife Kelly was formally diagnosed with a very aggressive and terminal form of Motor Neurone Disease called Amyotrophic Lateral Sclerosis (ALS). In 12 short months, Kelly has gone from a very outward going, fit, energetic 47 year old person to one who now requires full time care. This has resulted in me giving up my Music Therapy work and my role as a Reserve Director of Music with the Lancashire Artillery (V) Band to care for Kelly, look after our two daughters and keep the home functioning. It has been and continues to be a hugely difficult and challenging time for all of us as a family to come to terms with. We have become intrinsically linked to two charities, our local Severn Hospice in Shrewsbury and the more national Motor Neurone Disease Association (MNDA) and various incredible professionals who work for those charities. They will be with us on our journey however long that may be.
So, what do you do when you're up against it as a musician? You decide with the support of family and friends to undertake a 24 hour 'Music-a-thon' or 'The longest music jam in town' of course, to do some good for others like us facing this daunting and scary future. We plan on making music for 24 hours, some of which I know will be top quality, some of it might not, but who cares. I can guarantee that we will have a load of fun doing it and hopefully raise a stack of money at the same time. There may even be cake so what could be better than that!
P.S. Just a little crazy family video from July 2020 during the virus for you to watch, a year before Kelly began to show symptoms.

The End - Kelly passed away peacefully on the 11th October having fought every step of the way. She was such a courageous woman, who never gave up and still had a sparkle in her beautiful eyes to the end. Thank you for all your support in helping us to raise funds for our charities.

Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto Motor Neurone Disease Association and Severn Hospice Limited.

My updates

7 months ago

Wow, thank you Karen Bailey for such a generous donation through your wonderful special birthday fund raising. Xx

1 year ago

Just want to say a huge thank you to Vicky and Jack Heath of Rural Space, Harmer Hill, for hosting such a wonderful Christmas event in aid of our two charities. We raised over £1000 from donations and the auction. Such generosity from all involved.

Image uploaded with update

1 year ago

Amazing to see that the donations have continued to mount. Thank you to everyone for showing such support to us as a family and the two important charities. Xx

1 year ago

Thank you to everyone for your help, support and donations. What an incredible time we have had!

1 year ago

Well the day has arrived folks where we go live on the 24 hour ‘Music-a-thon’! I want to thank everyone who has so generously donated over the last two weeks leading up to today. It is incredible that we have already raised over 50% of our original target and we haven’t even played a note! Let’s now push on and smash the target! Your support is huge and I know it will keep us all pushing on through the dark hours both during the event and afterwards as we continue to live with the disease as a family in support of Kelly.
Thank you xx

My 2 charities

Motor Neurone Disease Association

Charity number: 294354

Severn Hospice Limited

Charity number: 512394

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