Summer Porter Biliary Atresia Splenic Malformation Syndrome

My beautifull grandaughter Summer, has BASM, and even though she has had A Kasai procedure, her liver is badly cihrosed, she is now on the liver transplant list, i want to raise awarness and raise more money for C.L.D.F both my daughter and myself have health problems so are unable to run walk etc. but still want to raise cash somehow we have put some videos on you tube 1, biliary atresia Summers story, 2, childhood liver disease imagine cldf 3, childhood liver disease the facts. we have posted them on face book but need to put it out further i just want to do something, watching an eight month old baby suffer is terrible. and there are so many out there in the same position. some lose their battles. so this is for all the children out there with liver disease