Walking for Debra the Butterfly Skin Charity - Please help.

Parallel Windsor

My nephew Matthew, along with other unfortunate people, suffers from a rare skin disorder, Epidermolysis Bullosa (EB) – a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering.

Butterfly Wing Skin.

We will be joining Parallel Windsor a Festival of Inclusivity with Challenge Events for all ages, health conditions & abilities. Held in the grounds of the majestic Windsor Great Park & staged on the iconic Long Walk. We will be walking for Debra.

Doing a long walk may not seem difficult but we will be walking with Matthew who has little and blistered skin on his feet and other parts of the body. That makes the walk a challenge and a very long way indeed. 

DEBRA is the national charity supporting those directly affected by, and working with, Epidermolysis Bullosa (EB) – a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. DEBRA provides lifelong care and support to the entire EB community. Together we can Fight EB and together we will beat EB.
Please help us and thank you.

Ian and Amy