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Gabrielius Misurenkovas is raising money for DebRA
#FightEB so Gabrielius can play like other kids
Event dates: 1st January 2018 – 31st December 2018
Gabrielius is just like other kids. He's energetic and smiley and he loves to play football. But his skin is as delicate as a butterfly's wing - any form of physical contact could permanently damage his skin.
For this five-year old, playtime is simply another painful challenge.
He just wants to be able to play like other kids. Gabrielius suffers from Epidermolysis Bullosa (EB) - a potentially fatal skin condition that causes unstoppable internal and external blistering.
His parents struggle to watch him in agony every day.
'If Gabrielius gets a blister, he'll try and ignore it. But we have to step in and lance it, otherwise it'll get worse - the damage done will never heal properly. He knows to tell his friends to be careful around him, but that?s not the same as being able to play like other kids,' says his dad, Linas.
Gabrielius' parents are raising money to help him, and other people like him, live life free of EB.
EB dominates every aspect of life for the whole family. Gabrielius' mum, Joileita, gave up her career to care for him full time. Linas had to his quit a job to find one that didn't demand overtime. But in spite of all their efforts, Gabrielius never experiences a day without pain.
Give now to make a real difference to people suffering from EB, like Gabrielius.
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