6 minutes ago
Anonymous
+ £2.50 Gift Aid
6 minutes ago
+ £2.50 Gift Aid
1 week ago
+ £5.00 Gift Aid
I hope this will encourage you to keep running the last bit
1 week ago
Good luck
1 week ago
+ £5.00 Gift Aid
Good luck
1 week ago
+ £2.50 Gift Aid
Good Luck Heather - we know you’ll smash it !
1 week ago
Good luck auntie Heather, you can do it!
1 week ago
+ £7.50 Gift Aid
2 weeks ago
Good luck guys! From all at Rev Comps
2 weeks ago
+ £5.00 Gift Aid
2 weeks ago
+ £5.00 Gift Aid
Good luck Heather.. you'll smash it.! Xx
Event date: 27th April 2025
Heather Crowley is raising money for DEBRA
My brother and I both have EB (epidermolysis bullosa). This is a rare genetic condition that causes painful skin blistering and tearing all over the body. Whilst our symptoms are getting worse as we get older, we are both extremely lucky. Some people will have life limiting or fatal outcomes from EB.
I am attempting(!) to run the London Marathon to raise money for DEBRA, the EB charity. The money will help DEBRA to support people living with EB, families needing additional support, whether that be physical, emotional or financial; giving them time away to create special memories when time might be limited. It will also go towards improving research and potential treatments, so that others don’t have to have this horrible condition - and those with the most serious types of EB have far better outcomes.
This is going to be one of the hardest things I have ever done - I’m not a runner! My skin won’t hold up past a few miles, however knowing why I am running will keep me going. Recovering from the marathon will be long and painful, but this is nothing in comparison to those with more severe forms of EB, who live like this daily.
Thank you for your support and giving what you can
Heather x
Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto DEBRA.
3 months ago
All the gear and no idea!
Training commences this week… here goes nothing!
Thank you for all your support x