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Total raised so far

48%

£1,220.00 of £2,500 target +£140.00 Gift Aid See breakdown

Recent donations

6 minutes ago

Anonymous

£10.00

+ £2.50 Gift Aid

1 week ago

Anonymous

£20.00

+ £5.00 Gift Aid

I hope this will encourage you to keep running the last bit

1 week ago

Rachel

£10.00

Good luck

1 week ago

Pat Newland

£20.00

+ £5.00 Gift Aid

Good luck

1 week ago

Nadia & Rob

£10.00

+ £2.50 Gift Aid

Good Luck Heather - we know you’ll smash it !

1 week ago

Willis Family

£30.00

Good luck auntie Heather, you can do it!

1 week ago

Anonymous

£30.00

+ £7.50 Gift Aid

2 weeks ago

Rev Comps

£500.00

Good luck guys! From all at Rev Comps

2 weeks ago

Ruthie Adams

£20.00

+ £5.00 Gift Aid

2 weeks ago

Geoffrey Lane

£20.00

+ £5.00 Gift Aid

Good luck Heather.. you'll smash it.! Xx

Heathers London Marathon 2025

Event date: 27th April 2025

Heather Crowley is raising money for DEBRA


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My story

My brother and I both have EB (epidermolysis bullosa). This is a rare genetic condition that causes painful skin blistering and tearing all over the body. Whilst our symptoms are getting worse as we get older, we are both extremely lucky. Some people will have life limiting or fatal outcomes from EB.

I am attempting(!) to run the London Marathon to raise money for DEBRA, the EB charity. The money will help DEBRA to support people living with EB, families needing additional support, whether that be physical, emotional or financial; giving them time away to create special memories when time might be limited. It will also go towards improving research and potential treatments, so that others don’t have to have this horrible condition - and those with the most serious types of EB have far better outcomes.

This is going to be one of the hardest things I have ever done - I’m not a runner! My skin won’t hold up past a few miles, however knowing why I am running will keep me going. Recovering from the marathon will be long and painful, but this is nothing in comparison to those with more severe forms of EB, who live like this daily. 

Thank you for your support and giving what you can

Heather x


Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto DEBRA.

My updates

3 months ago

All the gear and no idea!
Training commences this week… here goes nothing!
Thank you for all your support x

Image uploaded with update

Heather Crowley is fundraising for

DEBRA

Charity number: 1084958

Heather Crowley is fundraising as part of

BE the difference

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