Skip to main content

Total raised so far


£270.00 of £2,000 target +£50.00 Gift Aid See breakdown

Recent donations

1 week ago

Maxine and Des


Good luck Jaco thank you for thinking of Dylan and Debra

3 weeks ago



Good luck cuz, proud of you for raising funds and running the marathon

3 weeks ago

Aliya Jabbar

£10.00 + £2.50 Gift Aid

All the very best Jaco!

3 weeks ago


£20.00 + £5.00 Gift Aid

Bravo, Jaco!! You got this.

3 weeks ago


£50.00 + £12.50 Gift Aid

3 weeks ago

Rachel Wadia

£20.00 + £5.00 Gift Aid

Great charity and incredibly deserving. You will do brilliantly, best of luck!

3 weeks ago

Helen Smith

£20.00 + £5.00 Gift Aid

Fair play Jaco, go for it

3 weeks ago


£20.00 + £5.00 Gift Aid

Incredible to see Jaco. Go smash it!

3 weeks ago

Jo Snowden

£50.00 + £12.50 Gift Aid

What an inspiration! So excited to see your journey. The very best of luck.

3 weeks ago

Erwin Grim


Wonderful to see you supporting this cause, good luck!

Jaco Jacobs is raising money for DEBRA

Jaco London Marathon 2023 for DEBRA

Event date: 23rd April 2023

Share this page with your friends:

My story

This isn't really about myself but more the fact that there is a charity that many people haven't heard of and also not aware of the condition that is affecting so many babies, children and adults out there. The one family that this has really affected are a family that I will do whatever I can for, any time of day as they mean a lot to me.

Simon and Karen Talbot had a lovely baby boy which I unfortunately never had the pleasure of meeting but he has touched so many people over the years despite being a very special butterfly angel. Dylan was born he was rushed off to the Special Care Baby Unit and Simon and Karen were told that he had Epidermolysis Bullosa (EB) which meant that they couldn't actually hold their baby boy as it could cause his skin to blister. Having know them both for many many years, I know that this was the most difficult thing ever for them! Unfortunately Dylan was diagnosed with the most severed form (Junctional EB) and was only given a few months to live.

There are 4 forms of EB and more details of each of these can be found on the DEBRA website (

The forms are:

EB Simplex (EBS)

Dystrophic EB (DEB)

Junctional EB (JEB)

Kindler (KEB)

DEBRA was there through everything for Simon and Karen and they will continue to be there for anyone out there that has to go through what they have had to go through. Every charity needs funds to help support the families out there to make as many memories as possible for the babies that do not make it to being a toddler.

So please can you help in any way you possibly can to continue to raise money for DEBRA to help the families going through the process and also to help with research in trying to find a cure for EB. We are all here because someone has helped get us to where we are today so a little but of help from you all to this awesome charity would mean the world to another family.

I'm therefore going to take part in the 2023 London Marathon to raise money and raise awareness.

Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto DEBRA.

My updates

1 week ago

Parkrun this morning. Felt ok and was a nice consistent pace which is perfect.

5134m distance
0:41:45 time
8:07min/km speed

2 weeks ago

3rd training run and felt good. Went for it the last 300m just to get the heart pumping.

Went well and was much better than the last run. Went at it harder towards the end which felt good. Bring on Parkrun on Saturday!!

2532m distance
0:20:08 time
7:56min/km speed
Show map

3 weeks ago

Man that felt tough! Can tell the weekend wasn’t healthy!

Felt horrible but I’m 95% sure the weekend of drinking and unhealthy eating hasn’t helped.

2184m distance
0:18:58 time
8:40min/km speed
Show map

3 weeks ago

Marathon Training starts!

I’m running the 2023 London Marathon on behalf of DEBRA. Raising funds to support families and for research!

2541m distance
0:21:23 time
8:22min/km speed
Show map

Jaco Jacobs is fundraising for


Charity number: 1084958

Jaco Jacobs is fundraising as part of

A Life Free of Pain

Powered by

1 2 . 4 km Total distance

More great ways you can raise funds

Help me reach my £2,000 target

Your donations will help the great work DEBRA do.

Donate now