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Total raised so far


£475.00 of £2,000 target +£95.00 Gift Aid See breakdown

Recent donations

14 hours ago


£15.00 + £3.75 Gift Aid

Good luck

1 week ago

Simon Talbot

£50.00 + £12.50 Gift Aid

Best of luck and thank you for doing this

1 week ago


£10.00 + £2.50 Gift Aid

1 week ago



1 week ago


£5.00 + £1.25 Gift Aid

Well done buddy

2 weeks ago

Nathan Tomlin


Great guy for a great cause! All the best and hope you smash it

2 weeks ago

Gary Finch

£10.00 + £2.50 Gift Aid

Great cause, go smash it mate!

2 weeks ago

Gary Sheppard


1 month ago

Alan Silver

£20.00 + £5.00 Gift Aid

Good luck Jaco..running for a great cause.

1 month ago

Andy Bishop

£20.00 + £5.00 Gift Aid

Good luck son!

Jaco Jacobs is raising money for DEBRA

Jaco London Marathon 2023 for DEBRA

Event date: 23rd April 2023

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My story

This isn't really about myself but more the fact that there is a charity that many people haven't heard of and also not aware of the condition that is affecting so many babies, children and adults out there. The one family that this has really affected are a family that I will do whatever I can for, any time of day as they mean a lot to me.

Simon and Karen Talbot had a lovely baby boy which I unfortunately never had the pleasure of meeting but he has touched so many people over the years despite being a very special butterfly angel. Dylan was born he was rushed off to the Special Care Baby Unit and Simon and Karen were told that he had Epidermolysis Bullosa (EB) which meant that they couldn't actually hold their baby boy as it could cause his skin to blister. Having know them both for many many years, I know that this was the most difficult thing ever for them! Unfortunately Dylan was diagnosed with the most severed form (Junctional EB) and was only given a few months to live.

There are 4 forms of EB and more details of each of these can be found on the DEBRA website (

The forms are:

EB Simplex (EBS)

Dystrophic EB (DEB)

Junctional EB (JEB)

Kindler (KEB)

DEBRA was there through everything for Simon and Karen and they will continue to be there for anyone out there that has to go through what they have had to go through. Every charity needs funds to help support the families out there to make as many memories as possible for the babies that do not make it to being a toddler.

So please can you help in any way you possibly can to continue to raise money for DEBRA to help the families going through the process and also to help with research in trying to find a cure for EB. We are all here because someone has helped get us to where we are today so a little but of help from you all to this awesome charity would mean the world to another family.

I'm therefore going to take part in the 2023 London Marathon to raise money and raise awareness.

Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto DEBRA.

My updates

11 hours ago

Evening Run

First proper outing for about a week! Was good to get out there.

8415m distance
1:27:01 time
9:53min/km speed

3 days ago

Evening Walk

4504m distance
0:44:44 time
9:55min/km speed
Show map

5 days ago

Afternoon Run

Quick lunchtime route

3487m distance
0:32:41 time
9:21min/km speed
Show map

1 week ago

Afternoon Run

Very long distance today!

26.3km distance
4:26:07 time
9:58min/km speed
Show map

1 week ago

Morning Walk

12.3km distance
2:31:09 time
12:04min/km speed
Show map

Jaco Jacobs is fundraising for


Charity number: 1084958

Jaco Jacobs is fundraising as part of

A Life Free of Pain

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2 6 8 . 9 km Total distance

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Help me reach my £2,000 target

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