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Total raised so far

50%

£1,000.00 of £2,000 target +£60.00 Gift Aid See breakdown

Recent donations

20 hours ago

best friend

£200.00

Thank you!!!

2 days ago

Anna

£100.00

2 days ago

Selina

£10.00

4 days ago

Marius Kotlass

£100.00 + £25.00 Gift Aid

5 days ago

Christoph

£20.00

5 days ago

Schwesterherzchen

£50.00

1 week ago

Eme

£10.00 + £2.50 Gift Aid

Best wishes

1 week ago

Matthew Lang

£10.00 + £2.50 Gift Aid

This isn't a condition I had heard of before, so thanks for spreading awareness too. Best of luck with the marathon and happy training :D

1 week ago

Andy Heaps

£20.00 + £5.00 Gift Aid

1 week ago

Svenja

£20.00

Viel Erfolg 🍀🥳

Melanie Kobras is raising money for DEBRA

Melanie Running 4 Butterflies

Event date: 23rd April 2023


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My story

For English see below

Mein bester Freund ist eines morgens aufgestanden und hat beschlossen einen Marathon zu laufen - an diesem Tag. Ich hatte das Glück ein Teil von dieser großartigen Leistung als sein persönliches Versorgungsfahrrad zu sein. Warum ich euch das erzähle? Weil mein bester Freund unter Epidermolysis bullosa (EB) leidet, einer seltenen Krankheit die bei geringster Reibung zu Blasenbildung der Haut führt, auch Schmetterlingshaut genannt. Aber das hat ihn nicht davon abgehalten sich seinen Traum zu erfüllen einmal einen Marathon zu laufen. Sein Kampfgeist inspiriert mich dazu, meinen ersten Marathon (in London 2023) einer Spendensammlung für DEBRA zu widmen, damit viele andere, die an dieser extrem schmerzhaften, genetischen Hauterkrankung leiden, eine Chance bekommen zu kämpfen.

Bitte unterstützt mich und DEBRA um den Schmerz der Schmetterlingskinder zu stoppen!

One day my best friend got up in the morning and decided to run a marathon - on that very day. I was lucky enough to be part of this great achievement as his personal supply bicycle. Why am I telling you this? Because my best friend suffers from Epidermolysis bullosa (EB), a rare disease that results in easy blistering of the skin from minor friction, also called butterfly skin. But this didn't stop him from fulfilling his dream of running a marathon. His fighting spirit has inspired me to dedicate my first marathon (in London 2023) to raise money for DEBRA, so that many more who suffer from this extremely painful, genetic skin blistering condition get a chance to fight.

Please support me and DEBRA to #StopThePain of the butterfly children!

“Like the marathon, life can sometimes be difficult, challenging and present obstacles, however if you believe in your dreams and never ever give up, things will turn out for the best.” - Meb Keflezighi, U.S. Olympic marathoner


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Melanie Kobras is fundraising for

DEBRA

Charity number: 1084958

Melanie Kobras is fundraising as part of

A Life Free of Pain

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