Skydive for DEBRA

I want to help DEBRA raise much needed funds towards research into Epidermolysis Bullosa (EB) - the rare, genetic disease I’d never heard of, the disease most Doctors I’ve spoken to over the years have never heard of, the disease with no cure, the condition my husband and both our daughters suffer from.

Rich, Sylvie and Bonnie are pretty tough and rarely complain about their EB, despite the limitations and pain they face frequently. Last year at a DEBRA event we met children with more severe EB types and it made us realise that although we have our own struggles with EB, others unfortunately have it far worse.

DEBRA are a fantastic support to our family and their aim, through research is to find a life free from the pain of EB.

The chance of Sylvie or Bonnie one day having a child with EB is 50% per pregnancy. Therefore we strongly hope that the work DEBRA are funding can make a difference for their future as well as the vital support they currently offer on a daily basis.

I’m absolutely petrified of my upcoming jump out of a plane event, but I’d still rather do that than live with EB. What warriors. 💪🏼🦋

Thank you all at DEBRA!