Supporting Hyper Mobility Syndromes Association

For several years, I walked around with pain and various symptoms, one after another, that could not be explained. I was very close to giving up hope when I found out about hypermobility & Ehlers Danlos Syndrome. The resources from the GP Toolkit and the various booklets from HMSA Charity made it clear, for me and my GP, that I had EDS. It also helped us understand that my son is hypermobile too. This started the process of further diagnosis, treatment and rehabilitation. It has also put my son on the path to preventative support & giving him a good framework for living with hypermobility. None of this would have been possible without HMSA.

Hypermobility syndromes are often complex conditions which can be mild or (especially if undiagnosed and unmanaged) can become severely disabling, affecting mobility, digestion, heart rate and much more. They are widely misunderstood and often dismissed by medical professionals and by the general public - making it really hard for individuals to get the support they need to be able to understand and manage their condition as well as possible.

Money raised will help fund the training of volunteers who provide support to people with HMSs via helpline and on social media, new resources, education of medical professionals, and more.

So, in this month of EDS & HSD awareness, my son and I will be walking 1000 steps a day to fundraise for HMSA Charity. As someone who is mostly wheelchair bound for the past few months, it is going to be a challenge, but I hope to be able to do it, with my son (and husband's support), for a worthwhile cause.

The right diagnosis and treatment at the right time literally changes lives. You can be a part of that change!