#TeamDEBRA for London Landmarks Half Marathon 2025

#TeamDEBRA take on London Landmarks Half Marathon in April.

Back in November we had a bright idea to challenge ourselves to run a half marathon and now it’s coming up! For some of us, this will be our first half marathon (and maybe our last) so we need all the cheering on possible. Will you help us by supporting or sponsoring us?

The DEBRA team are:

Sinead Simmons, Runs & Challenges Manager joined by her sisters Ciara Leahy & Fiona O’Reilly

Ann Avarne, Corporate Partnerships Manager joined by her sister-in-law Selena To

Sophie Jones, Head of Membership and Engagement, Member Services

Karen Power, Scotland Events Manager

So, as well as challenging ourselves we thought nothing better than to support DEBRA.
DEBRA are a UK EB charity; a national medical research charity and patient support organisation for anyone in the UK living with an inherited form of EB, their family members, carers, plus healthcare professionals and researchers specialising in epidermolysis bullosa (EB).

Epidermolysis bullosa (EB), also known as butterfly skin, is a group of rare, genetic skin conditions that cause the skin to blister and tear at the slightest touch, resulting in incredibly painful blisters, open wounds, and excruciating itch. There are currently no cures and people with EB live in constant, debilitating pain.

Your support will bring us one step closer to a world where no one must suffer from EB. Thank you! 🦋