This page is closed and is not accepting further donations
Total raised so far
£150.00 of £1,000 target See breakdown
No donations to show
Paul Rutherford, Ross White, Mike Winder, Simon Roxbee are raising money for Wolfram Syndrome UK
Event dates: 15th January 2022 – 16th January 2022
Brothers Paul Rutherford& Ross White, their cousin Simon Roxbee & Mike Winder, a friend of Ross’s, have all done various forms of casual riding over the years as individuals but started riding as a group in January 2020, most recently taking a trip to experience Bike Park Wales.
As a team we decided to take part in the Strathpuffer24, which has been on Ross’ to do list for some time, for the experience & fun but decided to raise funds for charity at the same time whilst doing something that we enjoy, especially as charities have been hit hard during this pandemic. We chose the charity Wolfram Syndrome UK, due to close connections with one of the Co-founders whose daughter was diagnosed with this rare condition over 10 years ago. As a team we felt this was a very worthy cause.
Details about the Strathpuffer 24 - Freezing temperatures. 17 hours of darkness. Miles upon miles of gruelling terrain. A brutal mix of ice, wind, hail, rain, mud and snow, and maybe, just maybe, a glorious Scottish winter sunrise... When it comes to mountain bike challenges, they don't come much tougher or more rewarding than the Strathpuffer - the legendary 24 hour mountain bike endurance event held every year in the Highlands of Scotland in the middle of winter. The Strathpuffer follows the traditional 24 hour MTB format with laps of a circa 12.5 km course.
Wolfram Syndrome UK was set up in 2010 following the diagnosis of the 8 year old daughter of co-founders Paul & Tracy Lynch. There was no support for individuals or families in the UK at that time. Wolframs Syndrome is a rare neurodegenerative genetic condition that affects 1 in 770,000 people in the UK. It usually starts with early onset diabetes during childhood. It has four main features Diabetes Insipidus (affects the bladder, Type 1 Diabetes, Optic Atrophy (can lead to complete vision loss) & deafness. No 2 people are affected the same which makes it harder to diagnose. There are also many other conditions that can affect an individual. It is unfortunately a life shortening condition with as yet no cure. Research is ongoing for a temporary treatment but ultimately a cure. There are currently 95 adults and children diagnosed with WS. Many doctors will never come across a person affected by WS.
To learn more about Wolfram Syndrome & the charity that supports the individuals & families affected please go to their website www.wolframsyndrome.co.uk.
Thank you for checking out our page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto Wolfram Syndrome UK.